Sunday 25 June 2023

Resist antibiotic resistance!!

 So, 'member last time, when I was complaining about how bad the antibiotics were making me feel? That the antibiotics were causing nausea, which required Gravol, which made my vision and dizziness worse? That the sinus infection was causing my MS symptom of pins and needles and burning feeling on my skin worse, which caused me to take marijuana, which flares up my asthma, which causes me to take asthma meds which help my sinus symptoms, but make my MS worse? And how I didn't think they were working, but I would give it one more day!? Yeah, good job listening to yourself. (sarcasm)

I've been on the different antibiotics for a combination of 12 days over two weeks, and I'm now waiting for my doctor to answer my email in which I told him that my infection is getting worse. I struggle through the side effects from the drugs that are vital. I struggle through the side effects of the drugs that I take to deal with the side effects from the drugs that are vital. I know in my heart that the drugs aren't working, but I put off starting new ones because I'm hoping the infection will just magically go away because I am scared of what the next side effects will be. Here's the story so far:

I email my doctor (as per previously arranged by him) and tell him I am pretty sure I have a sinus infection. I tell him that I'm going to still try to fight it with saline rinses and steroid liquids, but that I don't want to have to bother him on the weekend, so I'd better get a script now. I tell him I saved 2days of Doxy from last time so that I would be able to start right away. 

He responds with telling me that he's going to prescribe me more Doxy and he'll leave it up to me to decided if I need them. I think to myself that it would be a better idea to start something else as I am concerned with developing resistance, but I don't mention it.

I get a message from the pharmacy to let me know that I have prescriptions ready, and do I want them delivered. I ask them to hold onto them.

A day or two later I decide that I'm being stupid not to start the pills as I am definitely getting an infection, and if it gets much worse, my asthma or my MS or both will flare up. I start the Doxy that I have and email my doc to tell him that I'd rather have something else because it is giving me pretty bad heartburn. 

Then I get really sick. I start shaking pretty hard, which is really weird, but then I get nauseous and start doing what we call in my house, "everybody out!" That means that it seems like everything in your digestive system urgently needs to escape.  This sometimes includes both exits, but this time I get away with just the back exit after some taking some gravol. I feel lousy all day. I have phone call with doctor and he says he'll prescribe me something else. (He does check with me what I'm allergic to) *update: it was something I ate, as I got sick when I had it a week later. I didn't need to change this time!!*

I get a phone call from the pharmacist.

"You've been prescribed Moxi. You are allergic to Cipro. What is the reaction?"

Me: "Hives all over."

Pharmacist: "Ok, you definitely not that then."

So I email doc and have almost word for word the same conversation. 

Here's my big question: Do they think I don't know the difference between allergic and side effect?! Sheesh. I've been dealing with this since I was a preschooler!

After a few more emails and phone calls, I get Ammox-Clavu. Which I KNOW I've had too often, but considering how upset my stomach is, I play along and hope for the best. IDIOT!! Ok. I can't talk so badly about myself. I know my doctor is really good at his job, except this part. Now I have to start again. And now it has been weeks since I've been eating basically any vegetables!! This is REALLY difficult.


Sunday 18 June 2023

This is why I do it

This is why I'm trying so hard to change my life. This WEEK! THIS feeling!!! Being sick with co-morbidities is MISERABLE and if there is anything that I can do to stop feeling like this, I WILL do it. 

I have a sinus infection, and I will keep getting sinus infections until I am able to have surgery again, but for now I have to be on antibiotics. It took more than a week to find one that I could tolerate, and now I am only tolerating it by taking Gravol everyday to deal with the nausea. I'm not even sure they are working. I've giving them one more day for now. 

Anytime my immune system get activated, I have an MS symptom flare up. It feels like my skin is either burning on fire, or just so sensitive that I don't want anything touching it. I also have the most fun symptom of everything tasting wrong- tasting metallic.  My sense of smell is coming back since I'm working so hard on my sinuses, which is horrible because I can only smell some things, and their scent is so strong that it gives me a headache and nausea!

I also have a really bad headache from my neck being out caused by my scoliosis. So just in case I didn't have a headache and nausea before, I definitely do now!! 

I have other things happening, but that is the short version of my misery. I will just note right here how much fun it is to try and eat adding in the financial restraints I have because I can't earn any money for a couple of years. Food is SO expensive lately! Thanks covid. 

There are many positive things that I think about and want to get better for. I think about them and write them down and do all the positive mindset things that I can think of. Right now I am just reinforcing how motivating it is to remember how badly I don't want to feel this sick. Few people understand, but I can always talk to myself! This is so hard. I spend all day just trying to get through the hours. I'm in pain and so fatigued and feel awful. 

We need a better word for awful. Full of awe. That is not how I feel. Horrible. Full of Horror. Ok, I think it's time to finally let the gravol knock me out. I'm just getting silly.